1st
ENCOUNTER
INTERNATIONAL
DIAS-LOGAN SYNDROME (BCL11A-IDD)
Families, Researchers, Clinicians
brought together for the first time
Together,
let's move forward
hope
June 2027
3 4 5
Page 2 - The Event
The event
A historic moment
For the very first time, families from all over the world, researchers and clinicians will come together around Dias-Logan syndrome (BCL11A-IDD).
This event marks a crucial milestone:
to meet, share, and advance research together.
Because together, every encounter can change the future
Building connections
Bringing together families, researchers and clinicians from around the world
Advancing research
Sharing knowledge, advances, and needs to accelerate progress
Breaking the isolation
To offer a space for listening, support and sharing between families.
Building the future
Together, let's lay the foundations for a better future for our children.
CONFIRMED SPEAKERS
Dr. Cristina Dias
Co-discoverer of the Syndrome
Dias-Logan.
Medical geneticist and researcher specializing in rare genetic diseases of neurodevelopment.
She works in particular on disorders related to the BAF complex and the BCL11A gene, involved in certain rare intellectual disabilities, including Dias-Logan syndrome (BCL11A-IDD), which she helped to identify and better characterize.
Professor
Stefan Britsch
Professor of Medicine and researcher at the University of ULM (Germany), where he leads the Department of Molecular and Cellular Anatomy.
His work mainly focuses on neuroscience, particularly on transcription factors involved in brain function.
Dr. Christoph Wiegreffe
Neuroscience researcher, currently a postdoctoral fellow at ULM University (Germany) within the Institute of Molecular and Cellular Anatomy.
His research focuses on brain development and function, particulary through the study of transcription factors using mouse models.
These mechanisms are directly involved in conditions such as BCL11A-IDD (Dias-Logan syndrome)
Other stakeholders and professionals may also join this event.
This presence allows for the creation of a direct link between families and the medical and scientific world.
This meeting is much more
than an event.
It's a hope. A turning point. A first step.
Page 3 - Program
The program
3 days of exchanges and sharing
THURSDAY
June 3, 2027
Welcoming families
Participant reception
Installation in the center
Initial informal exchanges
A friendly evening
Friday
June 4, 2027
A day dedicated to
researchers & clinicians
Scientific presentations on Dias-Logan syndrome
Exchanges between families and healthcare professionals.
Discussions about progress and needs
Question and answer time
SATURDAY
June 5, 2027
Meetings & Sharing
Workshops and discussions between families
Free time for discussion
Strengthening the international network
Friendly moments
PROGRAM CURRENTLY BEING DEVELOPED
The detailed program is currently being developed, both for children and for adults.
We are working to offer you time slots tailored to each individual, including:
Moments for discussion
moments of conviviality
time dedicated to well-being
We are doing everything we can to offer you a rich, balanced and welcoming program.
befitting this unique event.
Page 4 - Accommodation & Catering
Accommodation & catering
A fully paid stay
In order to allow as many families as possible to participate under the best conditions,
Accommodation and meals are fully provided on site.
2 nights and 3 days on the site
From Thursday, June 3rd to Saturday, June 5th, 2027 at the Azureva center
from Ronces-les-Bains.
Accommodation
included
Comfortable accommodation within the Azureva center, in a relaxing natural setting
Restoration
all-you-can-eat buffet
A variety of balanced meals are offered in an all-you-can-eat buffet format, catering to all tastes and dietary needs.
Azureva Center
La Tremblade - Ronces-les-Bains
Located between forest and ocean, the Azureva center offers an ideal environment to welcome families, exchange ideas and recharge.
Page 5 - Access & Transport
Access & Transport
How to come ?
The Azureva center in Ronces-les-Bains is easily accessible
by train, car or plane.
By train (TGV)
La Rochelle train station
(approximately 45 minutes)
Rochefort Station
(approximately 30 minutes)
TGV connection from several French cities.
Arrivals organization
We will do everything we can to facilitate your visit:
grouping of arrivals, transport solution to the centre and accompaniment if needed.
Practical information will be provided to you in advance of the event.
By plane
La Rochelle Airport - Ile de Ré
(approximately 1 hour)
Bordeaux Airport
(approximately 2 hours)
Paris airport, then TGV (Montparnasse station) to La Rochelle
.avif)
Page 6 - Contact & registration
Let's stay in touch
Need information?
We are here to support you.
Registration open
Join us!
Phone
As places are limited, we invite you to fill out the registration form in order to participate in this first international meeting.
+33 7 60 13 23 06
Address
Accommodation and meals provided for 3 days/2 nights
Association Together For Dias-Logan Syndrome
19 rue des aigrettes
17890 Chaillevette
Upcoming event
REPLAY - Virtual meeting of April 18, 2026
This meeting brought together more than 40 families from around the world, in the presence of Amy Stros, Dr. Cristina Dias and the founders of the association, Virginie and Alexis.
Dr. Cristina Dias's intervention was a highlight, providing valuable explanations about genetics and Dias-Logan syndrome.
It also provided an opportunity to present the first actions and projects of Together for Dias-Logan Syndrome.
Watch the replay of this match with French subtitles: